Why, oh why, do I not look at a calendar when I make Rowan’s appointments at the Children’s Hospital. I mean, of course I “look” at the calendar but I wish I was a little more mindful of it in August… the month in which delivered one of my most beautiful gifts into my life … Continue reading
Just a quick little ditty that I hope will light a fire under my butt… and hopefully yours. This was one damn long winter and planning The Princess Ball and single parenting for most of it (hubby works away from home) left me tapped right out. I have barely caught my breath and now it’s … Continue reading
Here it is… my pause and reflect Christmas post… I wonder if Christmas time will always be clouded by how Cystic Fibrosis has affected our lives… I hope not but for now I am purging some pain yet again. Much of the pain I am feeling lately is the memory of our first Christmas – … Continue reading
Just returned from a very powerful Conference for Cystic Fibrosis Canada… I usually don’t like to write about something until I have all my ducks in a row and my thoughts collected in a linear kind of way… I want to write a blog post with “a point”. Today, I just can’t. Today I just … Continue reading
This living with Cystic Fibrosis can be a bit of a strain on the brain from time to time. Especially when you are also committed to fundraising and finding a cure. I have said it before and I’ll say it again – it would be very, very easy for us to stick our head in … Continue reading
There was a long period of time after Rowan was diagnosed that I wore the “Mom of a kid with a progressive, degenerative, terminal disease” – like a cape – like a big blanket of martyrdom wrapped around me for the whole world to see…. I didn’t want to be a martyr though – that … Continue reading
Just returned from the Annual General Meeting of Cystic Fibrosis Canada and once again I am humbled beyond belief. The energy of a group of people all there for the same reason is tangible… Everywhere I turned I met so many examples of leadership – I was inspired by the commitment and dedication to this … Continue reading
I have been thinking and writing and speaking a lot about fear lately…. What it does to our lives – how it can paralyze us. How it can be very real and not something we should fight or avoid. What it can do to make your life more amazing if you let it… When I … Continue reading
Still in recovery mode after The Princess Ball. Trying to take it all in. Trying to decide how to improve what needed improving. How to resolve what went wrong. All in all it was a great success… my kids are still talking about it – so I can only assume that everyone else’s kids are … Continue reading
I know I have been quiet over here lately…I have admittedly been VERY busy over here not much to say about this part of my journey I guess… until today. I am on the homestretch of our second annual Princess Ball for Cystic Fibrosis Canada and things are going great – better than great – … Continue reading
Finding Fearless 